SAILING IN HOPE

Navigating Life’s Waves–Because It’s Not Always Plain Sailing

About Me

I’m John, and I’ve been navigating the turbulent waters of life with ulcerative colitis—along with a few other health challenges—since childhood.


As a kid, sailing a little dinghy, I knew there was only one thing I wanted to achieve: a solo, non-stop sail around the world. But at 16, when I was diagnosed, what should have been a path toward that dream was slowly replaced by hospital visits, medication, and learning how to live around an unpredictable illness.


Years later, I found myself sitting in a clinic waiting room, I saw a scared teenager about to receive the same news I once did. I wanted to say something to help—anything. But I didn’t.


I regret it.


That regret lit the fuse.


I realised I had two choices:


  • Grieve for the life I thought I would have.
  • Do whatever I can to make my dream a reality.


Sailing in Hope is about taking back control. About sharing the unfiltered reality of living with chronic illness, supporting one another, and proving that we are more than the limitations placed on us.


I may not yet be an experienced solo sailor, but I know the challenges ahead all too well: fear, isolation, and exhaustion. I’ve lived with them for years. And if facing them again—this time at sea—helps even one person feel less alone, then it’s worth trying.


This is my story.

 

Turning the Tide: Rock Bottom to Sailing in Hope

For as long as I can remember, I have had a strong connection with water—the ocean, lakes, and rivers. On holiday in the South of France as a kid, I once spent an entire day in the sea. Hours later, I emerged as a prune-like testament to my obsession. I can’t fully explain this connection, but I know it’s there. 

 

Facing Fear, Isolation, and Exhaustion: The Battle of Solo Sailing and Chronic Illness

I’m not a solo sailor... yet. But from what lies ahead, the three big challenges of a solo non-stop circumnavigation already feel eerily familiar: fear, isolation, exhaustion.

Phase 1 Target Departure

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UK Circumnavigation

This survey is being conducted out of interest for the IBD community to better understand the experiences of those living with the condition

The Sea-Mammal Sail Scale is a simple, intuitive way to understand different types of sailing yachts by comparing them to familiar ocean animals.


At the age of 15, I made a decision: ignore it, and it might go away. It didn’t. It still hasn’t. But neither have I.

 It started when I was just 15. It was the kind of thing you want to pretend wasn’t happening. I thought if I ignored it-it would go away. But it didn’t.