IBD Patient Survey

How does Inflammatory Bowel Disease affect your daily life?

This survey is being conducted out of interest for the IBD community to better understand the experiences of those living with the condition. Your responses are anonymous, and the results will be summarised, shared on this website and be available for anyone to use. See the privacy policy about data collection on this site.


Image by Beatriz Gros from IBD EII

The survey was inspired by the diagram above created by Beatriz Gros, which illustrates the multidimensional aspects of Inflammatory Bowel Disease. Her work highlights how IBD affects not just physical health, but also emotional well-being, social life, work, and financial stability. Seeing this comprehensive view of IBD’s impact made me realise the importance of gathering real-world experiences from the IBD community.

Thank you for your time and insights.

The survey should take about 3-5 minutes. All answers are optional.

Part 1

Part 2

On a scale of 1 to 5, where 1 means 'not at all' and 5 means 'extremely,' how much do you think the following factors affect your daily life? There are no right or wrong answers—just share how you feel.


(1 = Not at all, 5 = Extremely)

Physical Health & Daily Life

Emotional & Mental Well-being

Social & Relationships

Financial & Work Impact

Coping & Support

Part 3

By clicking "Submit," you consent to your response being shared publicly on this website and on social media platforms.

Thank you for completing the survey. Please complete the CAPTCHA and click 'Submit'.

About Me

Hi, I’m John — an IBD warrior, spoonie and  wannabe solo world sailor.


At 16, I was diagnosed with ulcerative colitis. Since then, I’ve faced a myriad of health conditions that shaped my journey in ways I never expected. Too often, it felt like medical problems were in control of my life.


Ulcerative colitis took away my first dream of a life at sea. Since then, it — along with a few other challenges — has been chipping away at my freedom, gradually pushing me down a path I don’t want to walk.


Not long ago, I missed an opportunity to help someone who was in the same medical position I once was (and still am!).


That moment lit a fire in me.


So now I’m fighting back — fighting to reclaim my childhood dream of sailing solo, non-stop around the world.


Sailing in Hope was born from this mix of struggle, stubbornness, and salt water. This isn’t about being fearless — it’s about facing fear. It isn’t about avoiding every storm — it’s about learning how to navigate them. And most of all, it’s about reminding anyone who feels lost, isolated, or overwhelmed that hope is still out there, waiting on the horizon.