IBD Patient Survey

How does Inflammatory Bowel Disease affect your daily life?

This survey is being conducted out of interest for the IBD community to better understand the experiences of those living with the condition. Your responses are anonymous, and the results will be summarised, shared on this website and be available for anyone to use. See the privacy policy about data collection on this site.


Image by Beatriz Gros from IBD EII

The survey was inspired by the diagram above created by Beatriz Gros, which illustrates the multidimensional aspects of Inflammatory Bowel Disease. Her work highlights how IBD affects not just physical health, but also emotional well-being, social life, work, and financial stability. Seeing this comprehensive view of IBD’s impact made me realise the importance of gathering real-world experiences from the IBD community.

Thank you for your time and insights.

The survey should take about 3-5 minutes. All answers are optional.

Part 1

Part 2

On a scale of 1 to 5, where 1 means 'not at all' and 5 means 'extremely,' how much do you think the following factors affect your daily life? There are no right or wrong answers—just share how you feel.


(1 = Not at all, 5 = Extremely)

Physical Health & Daily Life

Emotional & Mental Well-being

Social & Relationships

Financial & Work Impact

Coping & Support

Part 3

By clicking "Submit," you consent to your response being shared publicly on this website and on social media platforms.

Thank you for completing the survey. Please complete the CAPTCHA and click 'Submit'.

 

Turning the Tide: Rock Bottom to Sailing in Hope

For as long as I can remember, I have had a strong connection with water—the ocean, lakes, and rivers. On holiday in the South of France as a kid, I once spent an entire day in the sea. Hours later, I emerged as a prune-like testament to my obsession. I can’t fully explain this connection, but I know it’s there. 

 

Facing Fear, Isolation, and Exhaustion: The Battle of Solo Sailing and Chronic Illness

I’m not a solo sailor... yet. But from what lies ahead, the three big challenges of a solo non-stop circumnavigation already feel eerily familiar: fear, isolation, exhaustion.

The content on this site is for informational purposes only and is not intended as medical advice. Always consult a qualified healthcare professional for medical concerns or decisions regarding your health.