IBD Patient Survey

How does Inflammatory Bowel Disease affect your daily life?

This survey is being conducted out of interest for the IBD community to better understand the experiences of those living with the condition. Your responses are anonymous, and the results will be summarised, shared on this website and be available for anyone to use. See the privacy policy about data collection on this site.

The survey was inspired by the diagram above created by Beatriz Gros, which illustrates the multidimensional aspects of Inflammatory Bowel Disease. Her work highlights how IBD affects not just physical health, but also emotional well-being, social life, work, and financial stability. Seeing this comprehensive view of IBD’s impact made me realise the importance of gathering real-world experiences from the IBD community.

Thank you for your time and insights.

The survey should take about 3-5 minutes. All answers are optional.

Part 1

What is your age group?

Are you?

What is your region?

What type of IBD do you have?

How many years ago were you diagnosed?

What is your current treatment?

Other treatment

Part 2

On a scale of 1 to 5, where 1 means 'not at all' and 5 means 'extremely,' how much do you think the following factors affect your daily life? There are no right or wrong answers—just share how you feel.

(1 = Not at all, 5 = Extremely)

Physical Health & Daily Life

How much does IBD affect your daily energy levels?

How much do side effects from IBD treatments or medications affect your daily life?

How much does IBD impact your ability to work or study?

How much does diarrhea impact your daily life?

How much does IBD interfere with your ability to travel?

How much does IBD limit your ability to exercise?

How much does IBD disrupt your sleep?

How much does IBD affect your diet and ability to eat what you want?

How much does IBD interfere with your ability to plan daily activities?

Emotional & Mental Well-being

How much does IBD contribute to stress or anxiety?

How much does IBD make you feel isolated or lonely?

How much does IBD affect your self-confidence or self-image?

How much do you feel uncertain about your future because of IBD?

How much do you worry about accessing healthcare when needed?

Social & Relationships

How much does IBD affect your ability to maintain friendships?

How much does IBD impact your romantic relationships?

How much does IBD make social events (e.g., restaurants, gatherings) stressful?

How much do you feel people misunderstand what it’s like to live with IBD?

Financial & Work Impact

How much has IBD affected your career opportunities?

How much has IBD impacted your ability to maintain a steady income?

How much do healthcare costs related to IBD cause financial stress?

Coping & Support

How much do you feel supported by family or friends in managing your IBD?

How much do you feel supported by healthcare professionals?

How much does IBD affect your ability to stay positive and motivated?

How much does IBD limit your ability to enjoy hobbies and interests?

Part 3

Please share one experience where IBD significantly affected your plans or daily routine.

What is the one change you wish for in managing your IBD?

Is there anything else you would like to share about your experience with IBD?

Do you have any comments about this survey?

By clicking "Submit," you consent to your response being shared publicly on this website and on social media platforms.

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