How does Inflammatory Bowel Disease affect your daily life?

This survey is being conducted out of interest for the IBD community to better understand the experiences of those living with the condition. Your responses are anonymous, and the results will be summarised, shared on this website and be available for anyone to use.

Who am I?

Hi, I’m John, and I’ve been living with ulcerative colitis since I was 15. Through Sailing in Hope, I combine my love of the sea with my mission to inspire and support others facing chronic illness. This survey is an important step in understanding the real challenges of living with IBD. Your responses could help shape better awareness, support, and resources for our community. 


Image by Beatriz Gros from IBD EII

The survey was inspired by the diagram above created by Beatriz Gros, which illustrates the multidimensional aspects of Inflammatory Bowel Disease. Her work highlights how IBD affects not just physical health, but also emotional well-being, social life, work, and financial stability. Seeing this comprehensive view of IBD’s impact made me realise the importance of gathering real-world experiences from the IBD community.

Thank you for your time and insights.

The survey should take about 3-5 minutes. All answers are optional.

Part 1

Part 2

On a scale of 1 to 5, where 1 means 'not at all' and 5 means 'extremely,' how much do you think the following factors affect your daily life? There are no right or wrong answers—just share how you feel.


(1 = Not at all, 5 = Extremely)

Physical Health & Daily Life

Emotional & Mental Well-being

Social & Relationships

Financial & Work Impact

Coping & Support

Part 3

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